Navigating life with hemophilia : a qualitative study on the lived experiences of hemophilia patients /
by Janella Moira Amores, Ryna Angelica Juanica, Princess Diana Laquian, and [others.]
- Dumaguete City : Foundation University, 2025.
- 105 leaves : ill. (chiefly color) ; 28 cm. leaves
- CON-Th .
Undergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025.
Includes bibliographical references and appendices.
Abstract This qualitative study explored the lived experiences of individuals diagnosed with hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients. Keywords: Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability