03020naa a2200373Ia 4500003000400000005001700004008004100021040005900062050004600121100003500167245019600202260005300398264001700451300006500468336002600533337002800559338003500587490001100622502009100633504005600724520143200780650003902212650003202251650002602283655001102309658007502320700003602395700003902431700003702470700003902507700003602546700003502582700002902617OSt20260520082813.0260520s2017    xx            000 0 und d  aFoundation UniversitybEngcFoundation Universityerda  a(CON-Th)  LG 221 D35 N87bA5 N87 2025 A46  aAmores, Janella Moiraeauthor.10aNavigating life with hemophilia :ba qualitative study on the lived experiences of hemophilia patients /cby Janella Moira Amores, Ryna Angelica Juanica, Princess Diana Laquian, and [others.]  aDumaguete City :bFoundation University, c2025.  c2025.42025.  a105 leaves :bill. (chiefly color) ;c28 cm.3thesisfleaves  2rdacontentatextbtxt  2rdamediaaunmediatedbn  3CON-Thavolumebnc2rdacarrier  aCON-Th  aUndergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025.  aIncludes bibliographical references and appendices.  aAbstract
This qualitative study explored the lived experiences of individuals diagnosed with
hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and
psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing
Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients.
Keywords:
Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability  aHemophiliaxPatientsxPsychology.   aHemophiliaxSocial aspects.  aQualitative research.  aTheses  aNursing Research 2 (RLE) :bNursing, Bachelor of Science in ;cNUR 107  aJuanica, Ryna Angelaeco-author  aLaquian, Princess Dianaeco-author  aMaghilom, Lowen Jameseco-author  aMorgado, Justine Louiseeco-author  aOlivar, Kareena Mitzeco-author  aSalasalan, Florylieeco-author  aSiman, Yvonneeco-author