03470naa a2200469Ia 4500 OSt 20260520082813.0 260520s2017 xx 000 0 und d Foundation University Eng Foundation University rda (CON-Th) LG 221 D35 N87 A5 N87 2025 A46 799 Amores, Janella Moira 1517 author. Navigating life with hemophilia : a qualitative study on the lived experiences of hemophilia patients / by Janella Moira Amores, Ryna Angelica Juanica, Princess Diana Laquian, and [others.] Dumaguete City : Foundation University, 2025. 2025. 2025. 105 leaves : ill. (chiefly color) ; 28 cm. thesis leaves rdacontent text txt rdamedia unmediated n CON-Th volume nc rdacarrier CON-Th Undergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025. Includes bibliographical references and appendices. Abstract This qualitative study explored the lived experiences of individuals diagnosed with hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients. Keywords: Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability Hemophilia Patients Psychology. 14192 Hemophilia Social aspects. 15516 Qualitative research. 15517 Theses 16380 Nursing Research 2 (RLE) : Nursing, Bachelor of Science in ; NUR 107 FU Hemophilia, 16381 FU Emotional Distress, 16382 FU Resilience, 14704 FU Empowerment, 16383 FU Adaptability 16384 Juanica, Ryna Angela co-author 15539 Laquian, Princess Diana co-author 15540 Maghilom, Lowen James co-author 15541 Morgado, Justine Louise co-author 15542 Olivar, Kareena Mitz co-author 15543 Salasalan, Florylie co-author 16385 Siman, Yvonne co-author 16386 lcc TH LG 221 D35 N87 A5 N87 2025 A46 (CON-Th) 6058 6058 0 0 lcc 0 4 NFIC FOUNDATION FOUNDATION MAIN-UGThe 2026-05-20 Donated 0 (CON-Th) LG 221 D35 N87 A5 N87 2025 A46 0352026007006 2026-05-20 08:28:55 2026-05-20 TH CON-Th-2026007