000 03470naa a2200469Ia 4500
003 OSt
005 20260520082813.0
008 260520s2017 xx 000 0 und d
040 _aFoundation University
_bEng
_cFoundation University
_erda
050 _a(CON-Th) LG 221 D35 N87
_bA5 N87 2025 A46
099 _a799
100 _aAmores, Janella Moira
_91517
_eauthor.
245 1 0 _aNavigating life with hemophilia :
_ba qualitative study on the lived experiences of hemophilia patients /
_cby Janella Moira Amores, Ryna Angelica Juanica, Princess Diana Laquian, and [others.]
260 _aDumaguete City :
_bFoundation University,
_c2025.
264 _c2025.
_42025.
300 _a105 leaves :
_bill. (chiefly color) ;
_c28 cm.
_3thesis
_fleaves
336 _2rdacontent
_atext
_btxt
337 _2rdamedia
_aunmediated
_bn
338 _3CON-Th
_avolume
_bnc
_2rdacarrier
490 _aCON-Th
502 _aUndergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025.
504 _aIncludes bibliographical references and appendices.
520 _aAbstract This qualitative study explored the lived experiences of individuals diagnosed with hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients. Keywords: Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability
650 _aHemophilia
_xPatients
_xPsychology.
_914192
650 _aHemophilia
_xSocial aspects.
_915516
650 _aQualitative research.
_915517
655 _aTheses
_916380
658 _aNursing Research 2 (RLE) :
_bNursing, Bachelor of Science in ;
_cNUR 107
690 _2FU
_aHemophilia,
_916381
690 _2FU
_aEmotional Distress,
_916382
690 _2FU
_aResilience,
_914704
690 _2FU
_aEmpowerment,
_916383
690 _2FU
_aAdaptability
_916384
700 _aJuanica, Ryna Angela
_eco-author
_915539
700 _aLaquian, Princess Diana
_eco-author
_915540
700 _aMaghilom, Lowen James
_eco-author
_915541
700 _aMorgado, Justine Louise
_eco-author
_915542
700 _aOlivar, Kareena Mitz
_eco-author
_915543
700 _aSalasalan, Florylie
_eco-author
_916385
700 _aSiman, Yvonne
_eco-author
_916386
942 _2lcc
_cTH
_h LG 221 D35 N87
_iA5 N87 2025 A46
_k(CON-Th)
999 _c6058
_d6058