Navigating life with hemophilia : (Record no. 6058)

MARC details
000 -LEADER
fixed length control field 03470naa a2200469Ia 4500
003 - CONTROL NUMBER IDENTIFIER
control field OSt
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20260520082813.0
008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION
fixed length control field 260520s2017 xx 000 0 und d
040 ## - CATALOGING SOURCE
Original cataloging agency Foundation University
Language of cataloging Eng
Transcribing agency Foundation University
Description conventions rda
050 ## - LIBRARY OF CONGRESS CALL NUMBER
Classification number (CON-Th) LG 221 D35 N87
Item number A5 N87 2025 A46
099 ## - LOCAL FREE-TEXT CALL NUMBER (OCLC)
Classification number 799
100 ## - MAIN ENTRY--PERSONAL NAME
Personal name Amores, Janella Moira
9 (RLIN) 1517
Relator term author.
245 10 - TITLE STATEMENT
Title Navigating life with hemophilia :
Remainder of title a qualitative study on the lived experiences of hemophilia patients /
Statement of responsibility, etc. by Janella Moira Amores, Ryna Angelica Juanica, Princess Diana Laquian, and [others.]
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Place of publication, distribution, etc. Dumaguete City :
Name of publisher, distributor, etc. Foundation University,
Date of publication, distribution, etc. 2025.
264 ## - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE
Date of production, publication, distribution, manufacture, copy right date 2025.
Copyright Date 2025.
300 ## - PHYSICAL DESCRIPTION
Extent 105 leaves :
Other physical details ill. (chiefly color) ;
Dimensions 28 cm.
Materials specified thesis
Type of unit leaves
336 ## - CONTENT TYPE
Source rdacontent
Content type term text
Content type code txt
337 ## - MEDIA TYPE
Source rdamedia
Media type term unmediated
Media type code n
338 ## - CARRIER TYPE
Materials specified CON-Th
Carrier type term volume
Carrier type code nc
Source rdacarrier
490 ## - SERIES STATEMENT
Series statement CON-Th
502 ## - DISSERTATION, THESIS NOTE
Dissertation note Undergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025.
504 ## - BIBLIOGRAPHY, ETC. NOTE
Bibliography, etc. note Includes bibliographical references and appendices.
520 ## - ABSTRACT.
Abstract Abstract<br/>This qualitative study explored the lived experiences of individuals diagnosed with<br/>hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and<br/>psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing<br/>Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients.<br/>Keywords:<br/>Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Hemophilia
General subdivision Patients
-- Psychology.
9 (RLIN) 14192
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Hemophilia
General subdivision Social aspects.
9 (RLIN) 15516
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Qualitative research.
9 (RLIN) 15517
655 ## - INDEX TERM--GENRE/FORM
Genre/form data or focus term Theses
9 (RLIN) 16380
658 ## - INDEX TERM--CURRICULUM OBJECTIVE
Main curriculum objective Nursing Research 2 (RLE) :
Subordinate curriculum objective Nursing, Bachelor of Science in ;
Curriculum code NUR 107
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Source of heading or term FU
Topical term or geographic name as entry element Hemophilia,
9 (RLIN) 16381
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Source of heading or term FU
Topical term or geographic name as entry element Emotional Distress,
9 (RLIN) 16382
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Source of heading or term FU
Topical term or geographic name as entry element Resilience,
9 (RLIN) 14704
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Source of heading or term FU
Topical term or geographic name as entry element Empowerment,
9 (RLIN) 16383
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Source of heading or term FU
Topical term or geographic name as entry element Adaptability
9 (RLIN) 16384
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Juanica, Ryna Angela
Relator term co-author
9 (RLIN) 15539
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Laquian, Princess Diana
Relator term co-author
9 (RLIN) 15540
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Maghilom, Lowen James
Relator term co-author
9 (RLIN) 15541
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Morgado, Justine Louise
Relator term co-author
9 (RLIN) 15542
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Olivar, Kareena Mitz
Relator term co-author
9 (RLIN) 15543
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Salasalan, Florylie
Relator term co-author
9 (RLIN) 16385
700 ## - ADDED ENTRY--PERSONAL NAME
Personal name Siman, Yvonne
Relator term co-author
9 (RLIN) 16386
942 ## - ADDED ENTRY ELEMENTS (KOHA)
Source of classification or shelving scheme Library of Congress Classification
Koha item type Thesis
Classification part LG 221 D35 N87
Item part A5 N87 2025 A46
Call number prefix (CON-Th)
Holdings
Withdrawn status Lost status Source of classification or shelving scheme Damaged status Not for loan Collection code Home library Current library Shelving location Date acquired Source of acquisition Total Checkouts Full call number Barcode Date last seen Price effective from Koha item type Accession Number
    Library of Congress Classification   Room Use Only Non-fiction Foundation University Library Foundation University Library Undergraduate Thesis 05/20/2026 Donated   (CON-Th) LG 221 D35 N87 A5 N87 2025 A46 0352026007006 05/20/2026 05/20/2026 Thesis CON-Th-2026007