Navigating life with hemophilia : a qualitative study on the lived experiences of hemophilia patients / by Janella Moira Amores, Ryna Angelica Juanica, Princess Diana Laquian, and [others.]

By: Contributor(s): Material type: ArticleSeries: CON-Th2025 Description: 105 leaves : ill. (chiefly color) ; 28 cm. leavesContent type:
  • text
Media type:
  • unmediated
Carrier type:
  • volume
Subject(s): Genre/Form: LOC classification:
  • (CON-Th) LG 221 D35 N87 A5 N87 2025 A46
Dissertation note: Undergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025. Summary: Abstract This qualitative study explored the lived experiences of individuals diagnosed with hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients. Keywords: Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability
List(s) this item appears in: Nursing, Bachelor of Science in
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Thesis Foundation University Library Undergraduate Thesis Non-fiction (CON-Th) LG 221 D35 N87 A5 N87 2025 A46 (Browse shelf(Opens below)) Room Use Only 0352026007006

Undergraduate thesis (Bachelor of Science in Nursing) - - Foundation University, 2025.

Includes bibliographical references and appendices.

Abstract
This qualitative study explored the lived experiences of individuals diagnosed with
hemophilia residing in Negros Oriental, Philippines, emphasizing their physical, emotional, and
psychosocial struggles. Guided by Sister Callista Roy's Adaptation Model and utilizing
Colaizzi's descriptive phenomenological method, the research involved in-depth, semi-structured interviews with nine participants diagnosed with Hemophilia A and B. Findings revealed six emergent themes, fragility, turmoil, stigma, disruption, anchors, and breakthrough, that encapsulate the challenges and adaptive responses of the participants. The study uncovered the realities of chronic joint pain, limited physical mobility, financial constraints, emotional distress, and social misunderstanding, alongside the profound influence of faith, family support, and self-acceptance in fostering resilience. Participants expressed that while hemophilia imposed lifelong limitations, it also shaped their inner strength, optimism, and purpose. These insights highlight the necessity for nurses and healthcare providers to develop holistic, empathetic, and person-centered approaches that go beyond clinical management, addressing the emotional, social, and spiritual dimensions of chronic illness to promote overall well-being and quality of life among hemophilia patients.
Keywords:
Hemophilia, Emotional Distress, Resilience, Empowerment, Adaptability

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