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The lived experience of parents caring for children with autism spectrum disorder / by Myrtle May R. Benlot, Kyla A. Genuino, Vinz R. Guiuan and others.

By: Contributor(s): Material type: TextDescription: i, 233 leaves : ill. (col.) ; 28 cm. resourceContent type:
  • text
Media type:
  • unmediated
Carrier type:
  • volume
Subject(s): LOC classification:
  • (CoN-Nur) LG 221 D35 N87 A5 N87 2025 B46
Dissertation note: Undergraduate thesis (BS in Nursing) -- Foundation University, 2025. Summary: ABSTRACT This descriptive phenomenological study dives deep into the often unseen world of parents raising children with autism spectrum disorder (ASD), uncovering the raw emotions, daily battles, and quiet triumphs that define their caregiving journey. While much of the existing literature focuses on autism from a clinical lens, the lived realities of the parents those who shoulder the everyday weight of love, sacrifice, and advocacy are too often overlooked. This research aims to bring their voices to the forefront. Through intimate, semi-structured interviews with eight devoted parents, and using Colaizzi's method of data analysis, five powerful themes surfaced: Journey to Acceptance and Purpose, Burden of Daily Caregiving, Bound by Barriers, Resilience and Growth, and Advocacy and Awareness. Their stories reveal a profound evolution grappling with uncertainty, rising above exhaustion, navigating a world not built for their children, and ultimately transforming pain into purpose. These findings are more than data; they are a call to action for more compassionate support systems, inclusive services, and a society that sees, hears, and honors the quiet strength of parents raising children with ASD. KEYWORDs: Autism spectrum disorder, Barriers, Resilience, Awareness
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Undergraduate thesis (BS in Nursing) -- Foundation University, 2025.

Includes bibliographical references and appendices.

ABSTRACT
This descriptive phenomenological study dives deep into the often unseen
world of parents raising children with autism spectrum disorder (ASD), uncovering
the raw emotions, daily battles, and quiet triumphs that define their caregiving
journey. While much of the existing literature focuses on autism from a clinical lens,
the lived realities of the parents those who shoulder the everyday weight of love,
sacrifice, and advocacy are too often overlooked. This research aims to bring their
voices to the forefront. Through intimate, semi-structured interviews with eight
devoted parents, and using Colaizzi's method of data analysis, five powerful themes
surfaced: Journey to Acceptance and Purpose, Burden of Daily Caregiving, Bound by
Barriers, Resilience and Growth, and Advocacy and Awareness. Their stories reveal a
profound evolution grappling with uncertainty, rising above exhaustion, navigating a
world not built for their children, and ultimately transforming pain into purpose.
These findings are more than data; they are a call to action for more compassionate
support systems, inclusive services, and a society that sees, hears, and honors the
quiet strength of parents raising children with ASD.
KEYWORDs: Autism spectrum disorder, Barriers, Resilience, Awareness

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